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People take part in medical research for several reasons: to learn more about a specific medical condition or treatment options; to access the newest drugs and devices available only through a research study; or they believe the quality of care provided through research is better than what is currently available to them. The goal of Medical Research: A Consumer's Guide to Participation is to help you consider the issues related to participating in medical research and how it can expand options for healthcare. The Guidebook will explain why some research does not benefit the participant directly; the legal protections available to research volunteers; the researcher's and participant's respective responsibilities; and insurance and payment issues. Most importantly, the Guidebook will help identify questions to ask and factors to consider before and during the research study.
This resource may be helpful for individuals interested in participating in medical research; research scientists; physician-scientists; academic medical center administrators; and in-house counsel.