The Lion in the Path: Precision, Participants, and Privacy
Hosted by the Academic Medical Centers and Teaching Hospitals and Life Sciences Practice Groups
Sponsored by PYA
Carrie D. Wolinetz, Ph.D., Associate Director for Science Policy and Acting Chief of Staff to the Director at the National Institutes of Health (NIH), Bethesda, MD
Dr. Wolinetz will highlight the exciting science and initiatives NIH is currently doing in the realm of precision medicine along with promising discoveries, engagement efforts with research participants, and the agencies processes to secure privacy and protections of participants in NIH funded clinical trials and cohort studies.
- Precision medicine along with promising discoveries: (1) NIH POV: What is precision medicine? (2) NIH recent discoveries in precision medicine: BMT and gene therapy to treat SCD; others
- Engagement efforts with research participants: All of Us Research Program - mission and objectives; value for the research community; types of engagement; program infrastructure; data collections
- Privacy and protections of participants in NIH funded clinical trials and cohort studies: Privacy and protections/ revised Common Rule?; Certificates of Confidentiality Policy
This event is not included in the program registration; there is an additional fee of $60 for members of the sponsoring Practice Group / $70 of non-members; limited attendance; pre-registration required.